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Your Privacy Protected: Bill That Would Have Allowed Pharmacies to Share Patient Records with Drug Companies Unanimously Defeated in California Assembly Health Committee

Zack-Kaldveer.gifBy Zack Kaldveer
Consumer Federation of California

That's right, the final score of this battle over keeping prescription drug records private reads California consumers 1 - drug stores, pharmaceutical companies, and drug marketers 0.

I have posted a lot about SB 1096 in recent weeks, and I'm happy to say that the roller coaster ride is over! My first post on the topic was regarding its initial, and short lived defeat in the Senate. But alas, the bill was not dead...and came back to win Senate approval by a single vote.

It was at that time that the media started to cover the issue, with thanks to such reporters as the San Francisco Chronicle's Elizabeth Fernandez and the Los Angeles Times David Lazarus. The media's scrutiny of the bill's claims, along with the effective and outspoken opposition of groups such as ours (CFC) and Consumer Watchdog, combined with the outpouring of public sentiment AGAINST the legislation that arose in the last week created a kind of legislative "perfect storm". And Thankfully, our lawmakers were listening, as evidenced by its near unanimous defeat in the Assembly Health Committee.

As you probably know, we opposed SB 1096 (Calderon) because it raised significant privacy and health care concerns for patients. The bill would have created an exception to California's Medical Information Act, and allow sharing of confidential patient drug prescription information without a patient's consent. The bill's main backer, Adheris Inc., is a subsidiary of inVentiv Health Inc., a drug marketing company.

With that brief rehash of the past, let's get right to another great piece by David Lazarus...this time discussing the bill's rather stunning, and overwhelming defeat yesterday:

"The bill's "source" was a company called Adheris Inc., which used to be known as Elensys Care Services Inc. The company changed its name after it came to light in 1998 that CVS and other pharmacies were sending people's medical info to Elensys without their permission....

"One problem with Calderon's bill was its lack of transparency about who would pay for the reminder letters, and which patients would get them. Calderon originally told me that Adheris is paid by drugstores to handle communications on their behalf. He acknowledged Tuesday that drug companies "at times" reimburse pharmacies for their expenses.

"That's putting it mildly. Adheris Chairman Mike Evanisko testified before the state Senate's Health Committee in March that funding for the company's activities frequently comes from drug makers.

"The pharmaceutical companies sponsor these programs and [on] some occasions they pay us and we reimburse the chains for their expenses," he said. "And in some cases, the pharmaceutical companies who sponsor these pay the chains, and the chains pay us for providing the service."...

"Jeff Krinsk, a San Diego attorney who is suing Adheris on behalf of consumers whose prescription information was provided by Albertsons Inc., told me that not only are drug companies paying Adheris and drugstores to fund the letters, they're also choosing which patients receive reminders.

"They only do it for the drugs that are most profitable," he said. "The decision is made by the pharmaceutical companies."

"The reason, Krinsk said, is that pharmaceutical companies want to maintain brand awareness among patients taking expensive drugs and deter them from seeking lower-priced generic alternatives."

Here's my favorite piece of the article, apparently Senator Calderon, the bill's author, blames us "conspiracy theorists" for its unfair defeat. Rather than blame the facts for his loss, the Senator should instead take a look at our State's Constitution and maybe ask California consumers if they are okay with their prescription records being shared and sold without consent.

In a statement, Calderon blamed the demise of his bill on "a deceptive campaign of misinformation." "I've read so many inaccuracies in the press and heard so many conspiracy theories about SB 1096 that if I believed it all, I too would have voted against it," he said.

According to public records, Calderon has received at least $89,000 in contributions from drug companies and pharmacy chains since 2002.

Zack Kaldveer works for the Consumer Federation of California, a non-profit advocacy organization. Since 1960 CFC has testified before the California legislature on dozens of bills that affect millions of consumers. CFC also appears before state agencies in support of consumer regulations.

Posted on June 18, 2008

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